Questions are due Tuesday, January 26th
Chapter 23:
1. How long had Henrietta been dead before her family found out her cells were still alive?
2. Why did researchers want DNA samples from Henrietta's family? Did they get informed consent?
3. From a legal standpoint, is there a difference between what the doctors did when taking the families blood in 1973 without consent as compared to taking cells from Henrietta in 1951?
4. What were some of Deborah's concerns and fears after she found out her mom's cells were still alive?
5. The title of this chapter "It's Alive" is an allusion to the classic film of Frankenstein. What does this allusion suggest about the tension between scientific discovery and public perception (fear of these discoveries)?
Chapter 24:
6. What motivated Michael Rogers to find the Lacks family?
7. What facts support the idea the George Gey did not profit from HeLa cells?
8. In what ways do scientists, corporations, and individuals profit from HeLa cells?
9. What effect did Deborah's research of her mom's cells have on her?
10. What information did McKusick and Hsu publish about the Lacks family? Are there any ethical or legal problems with what they published?
Chapter 25:
11. Summarize John Moore's story.
12. Why did Ted Slavin start Essential Biologicals?
13. Give at least one pro and one con of giving patients legal ownership of their cells.
14. What was the decision of the Supreme Court of California regarding Moore's lawsuit?
15. Do you agree or disagree with the courts decision? Explain.
Chapter 26:
16. Why did Zakariyya decide to participate in research studies at Johns Hopkins?
17. How did Deborah react after reading about her mother's death?
18. Explain how Gold's journalism could be considered unethical or irresponsible?
19. What do Gold's comments about his decision to publish private information without consulting the Lacks family reveal about his attitude towards them?
20. How have laws regarding medical privacy changed since the early 1980s?
Do we have to write in a complete sentence or write the question?
ReplyDelete